Adam called with the update. They're getting ready to do another stem cell harvest. The newest wrinkle is that Logan is now on a medicine strike: He's thrown up or refused every single dose of every single medication they've tried to give him since last night. Apparently he either refuses to open up, or he takes them and then immediately says they're yucky, then works himself into such a tizzy over it that he throws up. Clearly, this is not good. But in his defense, he's 4 years old and hasn't been home in a month. There are adults who would behave in similar fashion if faced with his circumstances. I won't bother noting that it's egregiously unfair (well, I guess I just did, eh?), but really, what do they exect?
Anyway, Adam talked with Philippa (NP) this morning and explained what's going on and told her in no uncertain terms that regardless of the fact that Logan is being stubborn and uncooperative and refusing meds and most food, we want to take him home tonight. Even if we have to take him back in the morning for yet another harvest. She was on the same page, noting that his recent behavior hasn't been Logan-like at all, and said she'd go to rounds and press the doctor to let him go. He's a little kid. He just wants to come home. Keeping him there isn't doing anything but upsetting and making him resentful at this point, so I hope Dr. T can see that. At this point, he's hooked up to nothing but an empty line anyway, so it's not like he needs his IV pole.
Please, please, please, please, please, please, please (did I say please?) pray for a really good harvest today. In the real-world medical realm, it's not likely. But I KNOW it could happen. I just need God to hear us again, like He seemed to last week. The number we need to get today is 6.7, so please focus on that number. PLEASE. I'm tired, Adam is tired, Logan is tired and frustrated, and this all just sucks so much.
No comments:
Post a Comment