Adam (hi honey) decided to go ahead and read some of my notes yesterday, and told me last night that he saw that I'd 'gone postal' on Facebook. So this afternoon, in an attempt to rectify that situation, I'm going go to Fed- Ex instead. (Better, dear?)
Yesterday at the hospital was quiet but hard. To be blunt (and Fed-Exy), there's nothing about watching your child suffer that doesn't suck. The mucusitis (inflammation of the mouth, throat and along the digestive tract) hit much harder this round, making it extremely painful for him to do much of anything -- eat, drink, talk, even swallow saliva. He was very sweet the whole time he was awake (though it wasn't often), and was lucid enough to point out the ads on TV that were of interest: The Big Top Cupcake pan, a PlayDoh ice cream maker set and Marshmallow Pebbles cereal. Sweet signs that despite the suffering, he's still a 4-year old boy with 4-year old interests.
They finally managed to get his pain medication (morphene this time) levels right, so he's comfortable, but not completely zonked today. I even got him to put on his eye patch without TOO much of a fight, though at the moment, he's sort of cheating and tilting his head to the side so he doesn't have to use the muscles. Sneaky.
His hemoglobin was at 8.8 this morning, so he'll get a transfusion sometime this afternoon. His platelets were at 52, so it's likely he'll need those tomorrow. WBC is still under .1, but that's to be expected. Once the mucusitis begins to subside, the numbers should improve. We're still trucking otward the stem cell harvest, which is roughly a week away, pending recovery.
Please pray fist and foremost that the mucusitis will subside soon. It's painful for ME to see him so horribly uncomfortable. And while he's suffering, he can't eat, and although he's on liquid nutrition, his weight has been a constant issue. Also pray for the drugs -- and his body -- to do their jobs and get recovery moving along within a normal timeframe. It's hard to remain hopeful when he's in so much pain.
Thanks for your support.
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