Of course, he didn't really eat his chicken fingers, applesauce and juice, and the pretty chalk painting soon faded in a slow but steady sort of sprinkling rain, but it was worth the drive to make him happy for just a little while.
The rest of the day was essentially a blur of medicines, napping, fulfilling Stalin-like demands and the occasional request for cuddles. He continues to be tired -- very, very tired -- and painfully thin. He ate a fairly decent dinner (lasagna, of course), but then wound up throwing up much of it; his poor little tummy is so small and so unaccustomed to housing food that he gets nauseated much too quickly and easily, which leads him to try to vomit. It's frustrating -- no, beyond frustrating to see him eat well and then almost immediately expel the fare, but I suppose it's part of the process. If all goes according to the tentative treatment plan, he won't start cycle 4 until November 30, so we should have ample time post-recovery to convince him to eat, eat, eat and gain back some of the roughly 8 pounds he's lost. It may not sound like much to adults, but keep in mind that 8 pounds is more than 1/4 of his current body weight. Yeah: Ouch.
Although he's definitely become increasingly obstinate when it comes to taking his medications, he isn't complaining of pain or discomfort as frequently as we might have expected after rounds one and two. In fact, he's not on any pain meds at all, so he's doing quite well in that regard, if you ask us.
Anyway, as of this evening, no fever, so he's still here with us at home, thank God. We're assuming he'll need platelets again tomorrow, and he has his Vincristine (one of the chemo drugs) booster appointment Tuesday morning, but otherwise, we'd love to keep him home for as long as possible.
Thank you so much for your prayers and for sharing this blog with anyone who may be interested. And no worries if you can't figure out how to comment: It took me quite a while to figure it out myself. :)
Good night and God bless you ALL.
So happy you were able to have a good morning with him and even some one-on-one time with Logan. So sweet. What a blessing to have him still home and will keep praying and praying that he can stay there with you through the month.
ReplyDeleteContinuing to pray for home therapy, good counts, healing and of course that Logan can eat and keep down the food. hugs and prayers. Elizabeth
ReplyDeleteSo happy to hear today was such a good day for you and Logan. Happy to hear he still at home with mommy, daddy, sister and little brother. I will continue praying for his soon recovery. Hugs to you.
ReplyDeleteKarla
Sounds like a mostly awesome day! Continuing prayers, hugs, and positive vibes for his recovery.
ReplyDeleteIt brings me joy to read that you have all had a good day. Bless his little heart!
ReplyDeleteGlad you had a good day. I hope they keep on coming.
ReplyDeleteKris
Praying for keeping food down. And am hopeful for a nice family Thanksgiving!!
ReplyDeletewe love you all so much. Praying for you always.
ReplyDeleteGeez, 8 lbs! That definitely is a lot for a little boy :( PRAYING for successful eating and keeping it down! Praying for extended time at home, no illnesses, and a great Thxgiving together!
ReplyDeleteLove and hugs to all of you!
(P.S. we were looking at Derek's "Tiger book" the other day and Derek said (after looking at the back page with everyone's pictures) "mom, i miss Logan. Do you think we can have a playdate?" Made me smile and almost cry at the same time. Wish we could visit you guys in person!)
so glad to hear he is still home...we will pray for increased appetite and that his stomach will be able to tolerate it as well. xoxo
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