It always sucks to start out a new year with disappointment, especially when you'd had said-birthday built up in your head for a long while.
Logan's methotrexate number came back at .22 this evening. Twice. Yes, it actually went UP instead of down. Everyone was baffled. Philippa said that she'd seen the number do that on rare occasion, but never when it was trending downward as Logan's had been. So she made the lab re-run the same sample. Still .22. All I can think is that they somehow exposed the sample to light, since I know that can screw up the result.
Logan is crushed that he can't come home. He cried when he told me they wouldn't let him go a little while ago. It broke my heart into a million pieces again. I'm frustrated because although I enjoyed a nice afternoon at CHO with him, the lab took ages to get the results to us. They told Philippa they'd have the number by 3, but we didn't get it until nearly 4:30. And then it had to be re-run because it seemed so wonky. And the second result didn't get to Adam until 6, so he didn't call his mom to cover for him until then, which means he won't be home until at least 7. Most likely later. So my birthday evening is pretty much shot. I have no cake I can eat (I do have one -- thanks J! -- but Brady's allergy means I can't have it, but the kids will love it so no worries), no birthday dinner and my family is not together.
I'm trying very hard to not be upset that my 'magical birthday' that I'd been looking forward to for years has, in reality, been pretty lousy. Really, really fighting letting myself get upset.
Miracles happen when we allow God to do His great work; that's the tack that Logan's mom, Sherry, took when her dear-hearted 4-year old son was diagnosed with an AT/RT brain tumor in August of 2010. From expressions of hope and faith to pained pleas to God above, follow along as she shares her heart, waddles through her 4th pregnancy and the subsequent birth of baby Brady on 12/14/10, prays for her son's recovery and works to amass the biggest team of prayer warriors ever.
About Us
Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.
I'm so sorry, Sherry. You deserve to have what you want for your birthday. I'm even more sorry that Logan's number is doing odd things. I hope it resumes its downward movement.
ReplyDeleteKris
Sherry, do the "Presidential" thing and have your birthday "Celebrated." At a later, more convenient date. =) That is what I do for example, when my birthday is during Passover and I don't want a matzah cake, or I am traveling across the country with two small children on an airplane on my birthday. Hang in there!
ReplyDelete(((Sherry))) I am so sorry - I know how disappointed you are, and how much little things like birthdays together mean when you are dealing with an illness. Praying that the lab just did something wrong and that tomorrows levels are 3x lower. I agree with Naomi. We've had birthdays (and Christmas) at hospitals....and celebrated when we got home.
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