We're back to the same old-same old routine that we've grown to know over the course of the past 4.5 months: Logan and Adam at CHO, me at home with the other kids. Of course, things are a little more challenging on the homefront with Brady on the scene, but I manage.
Adam and I took him back to the hospital yesterday to begin round 5. Logan wasn't thrilled to be checking in again, but took the news with as much of a grain of salt as a 4-year old who's spent the majority of the past 5 months living in a hospital can take it. There was minimal complaining, and much sadness when the time came for me to head home. But I'm getting ahead of myself, as I usually do.
Philippa (who jokingly called herself my personal concierge, after Adam repeated my usual request that she try to start him out in the immunocompromised ward, if possible) successfully secured him a room in 5South and said we should aim to check in at 1. Logan chose Arbys for his final meal before the loss of his freedom, so we obliged. We headed to CHO and checked in more or less on time, though the room wasn't yet ready so we headed to the playroom for a few minutes while we waited.
He was pleased to see Molly again. He'd brought a bag of chocolate chip cookies to share with her and his doctors and nurses (though in reality, I'm pretty sure he intended that they be just for Molly!). It made me smile inside to watch him troll around, bag in hand, looking for her so he could share the treats. His check-in weight was a robust 16.8 kilos, up .8 from his official weight at the start of cycle 4.
All of his bloodwork and his creatnine clearance came back looking good, so Adam said he started the chemo at about 8 last (Tuesday) night. So for now, it's just a matter of finishing the round of drugs, clearing the methotrexate, and praying like the dickens that this last regular cycle will wipe out the rest of the tumor residuals so we can skip another surgery and go straight to transplant.
Tomorrow will bring a meeting with Dr. T, who we gather wants to explain what happened with the botched MRI read. Everyone we talked with yesterday was very concerned and confused over what had happened, including the on-call doc of the week, Dr. W. In reality, I think the hospital staff probably thinks we're more upset over what happened than we actually are; we're just so glad that not-as-great news morphed into good news that we don't really care much about the week of worry in between. Yes, it's always disturbing when there's a mistake made and it's upsetting to feel unnecessary strife, but everyone makes mistakes. So we're trying not to dwell. (And we'll have an explanation from Dr T soon enough anyway.)
Okay, well, I have more to say, but it's late and Brady has apparently decided that right now is a good time to scream his head off. Please continue to pray for Logan's complete healing and for protection against relapse over the course of the next few years. I'm trying to do better with prayer myself; I'm finding that it's true for me that when things are going well, I tend to forget to bring things to the Lord on a regular basis.
So off I go to cope with young Brady and to pray. Good night and my thanks to you all.
Miracles happen when we allow God to do His great work; that's the tack that Logan's mom, Sherry, took when her dear-hearted 4-year old son was diagnosed with an AT/RT brain tumor in August of 2010. From expressions of hope and faith to pained pleas to God above, follow along as she shares her heart, waddles through her 4th pregnancy and the subsequent birth of baby Brady on 12/14/10, prays for her son's recovery and works to amass the biggest team of prayer warriors ever.
About Us
Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.
We prayed last night at choir for the wonderful change in the news over the last week! We prayed for Cycle 5 to provide complete healing. We will continue to pray for all of you as the roller coaster ride continues.
ReplyDeleteI'm impressed with your grace toward the doctor -- a true example of how we who have received Grace are able to impart it to others with the Lord's help. Praying for Cycle 5!
ReplyDeleteLogan is always on my heart and the childrens hearts. Thank you for the update. = )
ReplyDeleteThinking of you as I realize how hard it must be to balance a new baby and all of the appointments and worry you must have with Logan. Thinking of you always, and so glad the not great news turned into some hope.
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