It's been an utterly draining 24 hours.
But before I get into my feelings in earnest, I want to thank all of you for reading, praying, hoping and believing, and especially for doing those things when I'm not strong enough to do them myself. Your words of support are invaluable, a salve to my aching, breaking heart.
And that's how I feel: Heartbroken. Deceived, disappointed, discouraged. I don't understand any of this. I don't understand why Logan has done so very well with his treatment if it wasn't working particularly well. I feel like I was given infusions of false hope, so I feel betrayed. It's hard to feel betrayed by God. I don't want to feel that way. But I do. And no matter how many pretty platitudes exist to put a band-aid on my pain, they don't help a single bit.
Of course, if I close my eyes and try to collect myself enough to 'get it together', my mind goes back to the notion that this is a spiritual battle. I know that not everyone here is on board with that theory, and that's okay. But it makes sense to me, in light of the incessant string of good news/bad news that's been our lives for the past half year.
Evil acted first by giving Logan the cancer. Then God acted by sending us to a doctor who would do what was necessary to find it in time. The other side acted again, filling my heart with terror and robbing me of peace as we awaited the results of the biopsy, and then again after we knew the severity of Logan's condition. Then God countered, blessing me with a sense of peace that I know I couldn't have mustered on my own. All was quiet from the other side until cycle 2, when there was a mistake made that led to a serious infection that left my sunshine on oxygen and with a belly as swollen as my then-7 months pregnant one. All the while, I struggled with faith and with hope and with believing that Logan would come out of this alive. I had many low moments during cycle 2, even before Logan became very ill. I'm ashamed to admit it, but at one point, I remember standing in my kitchen with Adam, furious with God over the cancer and the stress and our fractured family unit. Adam was talking about doing this or that for Logan, and in my anger, I blurted out 'why bother? He's going to die anyway'. It was an awful, horrible moment and it fills me with such shame to confess it, but in the interest of playing out the past several months in my mind in my ongoing quest to see God in the situation, it has to be here.
I had a turning point following a conversation with our pastor. After we spoke, he stood beside Logan and prayed for him in a quiet tone while I crafted a post that to this day, remains one of my favorites: Does Prayer Pack a Powerful Punch? I was overwhelmed by the response to that entry; by the renewed promises of support and prayer. And then not 45 minutes later, I could see God acting again, in the form of sudden, dramatic improvement in Logan's condition. And it solidified my shaky belief that prayer is powerful, and impelled me to grow Logan's prayer army as aggressively as I could manage. MORE aggressively than the cancer that was attempting to rob my Logan of his human life.
We received more good news in the form of an excellent report post-MRI #1: The tumor had reduced by 50%. I remember the unadulterated joy I felt. I also remember how the other side tried to contaminate my joy with thoughts of doom and death, but I resisted: After all, God had just spoken powerfully and I had hope.
Cycle 3 was a breeze; he sailed through it like a ship on calm seas. The wrinkle came the day before Thanksgiving, when Logan and Abby inadvertently pulled his chemo port loose, and he had to have it re-inserted. Another strike from the other side, trying to take away the joy of a holiday together as a family. He had the port replaced on Thanksgiving Day, and recovered quickly enough from the procedure to make it out for an evening dinner. Another one for God.
Cycle 4 also went off without a hitch, and we were blessed that Logan was home with us the morning of December 14: The very morning that I went into labor with Brady. He was able to meet him along with Abby and Isaac later that afternoon, and my heart was filled with joy to see all four of my babies gathered together. Praises to God.
But the other side was lurking, waiting to strike. And strike it did the following morning, as Logan developed a blood infection that sent his temperature soaring. But God anticipated the move and acted first, clogging Logan's central line and forcing Adam's parents to take him into CHO for his usual blood draw. It was there that he spiked the fever, and Philippa put him on medications immediately to help with his pain and to tackle the infection. Thanks to the quick action, he avoided a serious infection and was home again the following Tuesday, December 21. Home in time for Christmas, and with time beforehand to spend together doing fun holiday activities as a complete family. My prayers were answered.
Shortly after Christmas was his second MRI. The initial report we received was less than ideal; it showed that the primary mass hadn't changed, though the contrast was a little better. We were devastated... for a week, until Philippa called back with a different report from our oncologist saying that the mass looked much better and that he was very pleased. We were filled with hope. For the first time in a long while, I could see a future with my entire family, with all of my dear children at home long into the days to come, driving me crazy and bringing me peace, love and joy.
And then that vision was shattered yesterday, courtesy of the third MRI. But you all know that, and the pain is too fresh for me to rehash it right now.
I guess I wrote all of that out to paint a picture of the battle that's been raging all along. It's all very clearly a point/counterpoint kind of path, with one side striking a blow, followed by the other, and on and on. Which means that it's God's turn to strike a powerful blow. I'm holding fast to that, no matter how many people think I'm strange for doing so.
God is a God of healing, of power beyond our expectations. No, this hasn't gone the way we'd hoped and prayed it would, but I'm asking you all to stay steadfast, to not be discouraged. To keep pressing forward and onward. Logan's life is one worth saving, and I'm going to continue to plead with God to restore his health, to make him whole and well. And then to rise him up in this world as a beacon of light for all to see. And it won't be because doctors were able to use modern medicine to heal him. It will be because God acted in amazing, inexplicable ways to make him well.
I do believe that prayer can change things. I honestly do, and there is scriptural evidence to prove it. Ninevah, for one, and there are others. That's why I press for prayers and for the addition of warriors to Logan's team.
Seek and you shall find; ask, and the answer shall be given. Knock and the door shall be opened unto you.
Those ancient words are true.
To end this entry, I'd like to ask that if you happen to know of a healing scripture or two, that you'd post them below. I'm compiling a list, reading them, accepting them, believing them and owning them. I'm praying them over my sunshine and believing that God will heal him.
Thank you for sticking with us.
Miracles happen when we allow God to do His great work; that's the tack that Logan's mom, Sherry, took when her dear-hearted 4-year old son was diagnosed with an AT/RT brain tumor in August of 2010. From expressions of hope and faith to pained pleas to God above, follow along as she shares her heart, waddles through her 4th pregnancy and the subsequent birth of baby Brady on 12/14/10, prays for her son's recovery and works to amass the biggest team of prayer warriors ever.
About Us
Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.
Exodus 14:14 The Lord shall fight for you; you need only to be still.
ReplyDelete"There you saw how the Lord your God carried you, as a father carries his son, all the way you went until you reached this place."
ReplyDeleteDeuteronomy 1:31 (NIV)
Sherry - here's some encouragement. Becca at 13 months old came down with an infection that was not diagnosed for 6 weeks. She almost died from it, as it was distroying her kidneys. She had a PIC line in and we were administering 4 heavy hitting antibiotics, when she developed an allergic reaction to one of them. In the midst of this God led me to this verse, which has sustained me through many battles. Even with being someone familiar with the Scriptures - I had never remembered having heard this verse until that night in PICU.
Jer 29:11 - 14 For I know the plans I have for you, declares the Lord, plans for welfare and not for evil, to give you a future and a hope. Then you will call upon me and come and pray to me, and I will hear you. You will seek me and find me, when you seek me with all your heart. I will be found by you, declares the Lord, and I will restore your fortunes..."
Praying for you constantly. You know I am not very religious, but I looked some up and this stood out to me.
ReplyDeletePsalm 107:19-21
Then they cried to the Lord in their trouble, and he saved them from their distress; he sent out his word and healed them, and delivered them from destruction. Let them thank the Lord for his steadfast love, for his wonderful works to humankind.
I wish I knew more scripture - I don't go to church or read the bible. But I do know that there is a God and I hope that he can help your son heal and recover. I do believe in miracles and I sure hope one is in store for your family.
ReplyDeleteI was going to post Exodus 14:14, but I see someone beat me to it.
ReplyDeleteLet me just say that I am praying for you to continue to see God in this situation, Sherry. I am continuing to pray for Logan's complete healing on THIS side of Heaven. I'm praying that you get to see all of your children live a long, healthy, and happy life.
God is going to do something amazing here. I know it. I can feel it deep inside me. If I come up with any other scripture I will post it for you.
I sent your blog to my sister in law. She's an elementary school teacher in Maryland. The students and staff of St. John's Episcopal School in Olney, MD will be praying for Logan tomorrow at Friday chapel.
ReplyDeletePsalm 91 is a Psalm that I turn to frequently, Sherry.
ReplyDeleteHe who dwells in the shelter of the Most High will rest in the shadow of the Almighty.
I will say of the Lord, "He is my refuge and my fortress, my God in whom I trust."
Surely He will save you from the fowler's snare and from the deadly pestilence.
He will cover you with His feathers, and under His wings you will find refuge;
His faithfulness will be your shield and rampart.............
"Because he loves me," says the Lord, I will rescue him; I will protect him because he acknowledges my name.
He will call upon me, and I will answer him:
I will be with him in trouble, I will deliver him and honor him.
With long life will I satisfy him and show him my salvation."
God is working even when you can't see Him working, and we will keep praying and trusting Him. Sending hugs to you!
My friend wanted me to share Matthew 6:25-34:
ReplyDelete25 “Therefore I tell you, do not worry about your life, what you will eat or drink; or about your body, what you will wear. Is not life more than food, and the body more than clothes? 26 Look at the birds of the air; they do not sow or reap or store away in barns, and yet your heavenly Father feeds them. Are you not much more valuable than they? 27 Can any one of you by worrying add a single hour to your life[a]?
28 “And why do you worry about clothes? See how the flowers of the field grow. They do not labor or spin. 29 Yet I tell you that not even Solomon in all his splendor was dressed like one of these. 30 If that is how God clothes the grass of the field, which is here today and tomorrow is thrown into the fire, will he not much more clothe you—you of little faith? 31 So do not worry, saying, ‘What shall we eat?’ or ‘What shall we drink?’ or ‘What shall we wear?’ 32 For the pagans run after all these things, and your heavenly Father knows that you need them. 33 But seek first his kingdom and his righteousness, and all these things will be given to you as well. 34 Therefore do not worry about tomorrow, for tomorrow will worry about itself. Each day has enough trouble of its own.
As well as Psalm 121:
1 I lift up my eyes to the mountains—
where does my help come from?
2 My help comes from the LORD,
the Maker of heaven and earth.
3 He will not let your foot slip—
he who watches over you will not slumber;
4 indeed, he who watches over Israel
will neither slumber nor sleep.
5 The LORD watches over you—
the LORD is your shade at your right hand;
6 the sun will not harm you by day,
nor the moon by night.
7 The LORD will keep you from all harm—
he will watch over your life;
8 the LORD will watch over your coming and going
both now and forevermore.
(((hugs)))