I can tell you with one hundred percent certainty that the collective life of a family afflicted by a cancer diagnosis is one of highs and lows, ups and downs, meltdowns and revelations. After imploding a few days ago, feeling as if I'd never arise and see the sun again, I'm now in the comfortable, quiet post-meltdown phase of the process. A place where silence and stillness no longer make my skin crawl. Where I'm comfortable listening to the raindrops on the window panes and the repetitive ticking of the wall clock. Where I'm okay with hearing my own thoughts once again, because they're no longer stained with worry and worst-case scenarios. I am, to try to make an already long paragraph more succinct, at peace.
It's funny, but as challenging and exhausting as my lowest days are, I don't regret getting angry and losing focus now and again. I'm not perfect, so it helps me to look back on those weak points and recognize how dangerous it is for me to lose my hope, my faith. The knowledge helps me to track my own progress, so to speak, to see how I'm changing over time and how walking this path has altered me in both good and bad ways. And it gives me a greater appreciation for -- and joy over -- those every day moments that I'm guilty of taking for granted, even now, seven months into the ongoing quest for healing.
Today was a good day. School was closed for a furlough day and Alta Bates was conducting maintenance on their radiation equipment, so both Abby and Logan had the day off from their usual pursuits. A spur of the moment burst of inspiration prompted me to call Kelly, the preschool director, to see if any of the children in the class that should've been ours had been sick of late. She said no and I decided then and there that today would be the day that we'd go for a visit.
It was, to be blunt, a now or never kind of thing: For one, it was the only weekday morning he'd have available for the next several months, and in addition, at some point, his counts will likely be affected, rendering him unable to be out and about. And on top of those reasons, I also wanted to see how he'd react to a school setting, since he's been out since last May. Logan was excited about the prospect, especially when I told him that it was umbrella day, but also nervous about meeting so many friends at once, so he asked Abby to tag along and she complied. (And yes, Logan refers to them all as friends, even though he doesn't know them, because to my little sunshine, everyone is a friend. I wish I had that kind of tender heartedness.)
He did well, but was clearly ill at ease at times. He looked to me and to Abby for support and comfort, and was substantially more tentative than I'd ever seen him in an educational setting. But he participated: He colored an umbrella, drew a picture of himself and wrote an accompanying trio of words, had a snack, played outside, took part in the umbrella day activity. Most notably, he helped hand the teacher, Ms. Hope, supplies that she needed during the latter half of class time. I was struck by how much he wanted to be useful; how he delivered the first stack of items, and then returned to retrieve a second stack. I love how he wants to be a good person, how he wants to lend a hand when he can. He doesn't take, take, take as is so common in today's world. He gives, and enjoys himself when he does so. One of the many things I adore about my son.
Before we left, I tucked his precious papers -- the only ones he'll produce in preschool this academic year -- into the zipper compartment of my camera bag and will find a very safe, very special place to keep them. Because for Logan, this wasn't just another day at school: It was his only day at school. And I want to remember it via the photos I snapped and the beautiful artwork he created. I want to sop up every second and try to hold them all in my heart for as long as possible. And that's not because I'm scared that there won't be future like-moments to soak up, but because regardless of what the future holds, he won't ever again be a 4-year old in school. So much of his four-year-old-ness has been about hospitals and illness, that it was refreshing and heartening to see him do something that was once very much a part of his usual routine, even if it was for just a single day.
As we headed home, the rain came down in buckets; cats, dogs, horses, chickens and beavers, as I joked to Abby and Logan in the car. I asked Logan if he could hear the cats meowing and the dogs barking, and he listened for a moment before tentatively responding that yes, he thought he could.
At the house, I discovered the day's second blessing sitting on our front porch. I'd been told by a new friend -- who I met just yesterday at the grocery store after she recognized Isaac from a photo -- that a package was making its way to me from back East, and there it was. I hauled it inside, opened it up, and found inside the most awesome baby swing/cradle/rocker/ingenius device ever. Really. The 4Moms MamaRoo infant rocker. I put it together (which is no small feat for me, as I'm not exactly technically inclined or particularly good at reading assembly instructions) and nestled Brady into the pocket, and he happily slept in Tree Swing mode for a few hours. It's definitely a blessing and my thanks to 4Moms for the gift.
What they don't know is that just a few days ago, I'd remarked to a different friend that I wanted to borrow a white noise machine to see if it would help Brady to sleep better at night. I was surprised and pleased to find that the MamaRoo offers, you guessed it, several different types of white noise. So yes, God knew what I needed before I knew that I needed it. I may feel alone and tired these days, but I appreciate the God-moments when I recognize them.
Well, friends, I'm rapidly losing my focus, but wanted to jot down a few things here for you before I headed off to bed. Please keep praying for Logan's healing, and for our family's well-being. Thank you for your support and for keeping us close to your hearts. Good night.
Miracles happen when we allow God to do His great work; that's the tack that Logan's mom, Sherry, took when her dear-hearted 4-year old son was diagnosed with an AT/RT brain tumor in August of 2010. From expressions of hope and faith to pained pleas to God above, follow along as she shares her heart, waddles through her 4th pregnancy and the subsequent birth of baby Brady on 12/14/10, prays for her son's recovery and works to amass the biggest team of prayer warriors ever.
About Us
Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.
That is so great to hear. I take too many things for granted. There is so much love and creativity in our little children. Hannah just put sparkly lipstick all over her hands to make them smooth and pretty. In her world she feels like a true princesses. I can tell these years will pass very quickly.God bless you Sherry.
ReplyDeleteIsn't it cool that God uses these signs in our life to keep us going. Is Logan's teacher's name really Ms. Hope?? Hope is a good thing! Joanne
ReplyDeleteThank you for sharing your beautiful day with Logan. He is truly a special child. I'm glad that once again you are feeling a little more at peace and less uneasy. HUGS.
ReplyDeleteSherry,
ReplyDeleteI'm so thankful that you are in a place to able to appreciate treasures like yesterday, and that you guys got those experiences!
I love this post Sherry! I am amazed and grateful to God for your awesome insight into yourself through this process. Wow!
ReplyDeleteI'm SO happy that Logan got to go to school for a day!!! I know what you mean about Logan and his "giving" spirit ~ I totally remember that's how he was last year in preschool ~ ALL the time! He was and still is such a cool and special guy, in a lot of ways opposite from what human nature is and I think that's something so special God gave to him :)
And SO awesome about the Mamaroo thing! I don't know what it is, but it sounds like it's up Brady's alley, so that is GREAT!
Still praying, love you guys so much!
Sherry, So glad the the dark clouds that were darkening your spirit have cleared away to reveal the awesome rainbow that is God's promise to never leave you or forsake you. How wonderful that Logan got to have one 'normal' 4 year old day, sharing it with his best friend Abby. Thank you so much for sharing it with all of us! I am thankful for the seat/swing for Brady and pray that it truly changes your life and Brady's disposition. Isn't it wonderful that Logan's teacher's name is Ms. Hope? Co-incidence? I think not; simply another sign from God on this journey. Praying for many more 'sunny' days!
ReplyDeleteI'm so happy you all got to do this! I hope you can scan in the art and post it. What a lovely little boy.
ReplyDeleteThe paragraph about you safely tucking away his papers is quite moving. I am glad he had his day in school.
ReplyDeleteI also noted that the teacher's name is Ms. Hope. Fitting.
Kris
What a wonderful post! I thank you for it.
ReplyDeleteI'm sure Hope was thrilled to have Logan there!
So glad that the Mamaroo that was sent is working for Brady. Sounds perfect.