About Us

Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.

Sunday, May 15, 2011

5.14 Update, a Little Late

Last night Adam's mom stayed with Logan at CHO, so forgive me for not updating when I got home. Adam and I so rarely have time to sit around and talk these days that I tend to relish the opportunities and let other things slide when those little moments arise.

Yesterday was what I'd call an okay kind of day. His bilirubin level was up once again by another 2 to 10.2, which isn't a good thing. However, the two enzymes that are indicative of liver damage were down a little, which is positive. His WBC count was up a little more at 1.2, which should prayerfully mean that the sores from the mucositis --which by appearances seems to be much better-- should rapidly begin healing themselves. His weight, depending on who you ask --and don't get me started on weighing on a zeroed bed, ugh-- was either up a little or stable. His oxygen sats weren't great, but no one was super alarmed. He began the day on a high-flow nasal cannula set to 8 litres. That should have given him plenty of O2 and inflated his lungs, but he's a mouth breather lately, so all of the good pressurized air would go into his nose --if he inhaled at all, that is-- and right out of his mouth. So mid-day, a respiratory therapist brought in a mask for him to try. He hated it and screamed when she tried to put in on, so we let it sit for a while. An hour or so later, he was watching TV and I got his attention and asked if he wanted to feel better. He shook his head aggressively, and I asked if he'd wear the mask for a little while. Always needing to be in control :) he gasped okay but just for two hours. (Where he came up with two hours I have no idea.) After I held it up to his nose for a few minutes, he seemed to really relax and I asked if he'd wear it and he agreed, so I put it on. With the nasal cannula in place as well as the mask, he satted 99 to 100 for the first time in a week. But the resp therapist came in and took off the cannula, which brought him back down to the mid-90s and made him work a little harder. Part of me wishes we could've left both devices in place, but I'm sure they know what they're doing. So those are the official Saturday stats.

The emotional 'stats' are a little different. It's crushing to see my sunshine suffering as he is. It rips absolute canyons in my already-crushed heart. He struggles to talk, he struggles to breathe, his body is so broken. He's out of it most of the time, a combination of the morphine, the lack of oxygen and everything his body is attempting to overcome. I call, as I do every time I post, for his prayer warriors to rise up anew and take up armor in his defense. When I really reflect on it, pray on it, meditate on it, I believe that God wants to heal. I also believe that there's an intense battle going on.

Anyway, that's the update for now. I'll be heading to CHO in the next hour or so. Since he's still in the PICU, I can't update from there, so I'll try to do so once I get home again this evening. Blessings to you and yours from a rain-moistened Bay Area.

5 comments:

  1. Thank you. Thank You so much for updating us. I just think about you guys constantly and worry if there is no update but I'm so happy you and Adam were able to spend some alone together.
    I'm so encouraged to hear about his WBC coming up.
    We will keep praying.

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  2. Thank you for the update Sherry. We're praying for a complete healing for all of you!

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  3. Praying that this battle will end victoriously, with Logan healthy and happy, and your family given a new and refreshed zest for life.
    I went to give blood this afternoon, and I must've mentioned Logan several different times to each person I spoke with. Hoping that those who heard about him will lift Logan up with all of us other prayer warriors and that one day he will have an absolutely amazing testimony to share!

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  4. Praying as always for your guys Sherry. I hope he has a restful night and feels a little better in the morning.

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  5. As you were typing up this post I was giving Adam a hug and enjoying Brady's beautiful smile. I carry each of you with me throughout the day. I love the reminder to put on God's armor as we fight this battle! We sang a song at first service this morning about needing a new revival and it even mentioned raising us up as one united army : ) Praying with you and for you as always!

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