About Us

Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.

Friday, May 13, 2011

Friday Evening Update

Even before I arrived at CHO this afternoon, I felt confident that we needed to move forward with the Defibrotide. Not only was his bilirubin elevated even more, but his weight was up more than a kilo, and the relevant enzymes had reached levels that were considered troubling to the team. He's still considered a mild to moderate case right now --if indeed he has VOD at all-- so we're getting a good jump on controlling it and letting his poor little body heal. Of course we're terrified of the bleeding risk, but we felt as if we were fighting the clock, and didn't want to look back with regrets over not starting when we'd been advised that doing so would be best for Logan. So we both signed the consent, and he started the treatment this afternoon. It's administered via his chemo port four times per day for three weeks.

So tonight, I ask you to pray for effective treatment. That the Defibrotide will do its job and help to heal his liver very soon, and that he'll be protected from the side effects, namely serious bleeding. Please, please pray for those things. He needs every single team member praying for him and interceding right now.

I feel tired more than anything, but I also have a sense that I want to crawl out of my own skin. It's a horrible, miserable sensation. This kind of frantic, crazed fear is one of the worst feelings I've ever experienced as a parent, and although plenty of people have hurt me in the past, I'd never wish it on any of them. It's pure misery, agony.

Logan had a nice afternoon with me, all things considered, so I'm grateful for that. He was awake the entire three hours I was present, and although his eyes had what I call the Mophine Glaze, he was aware. He clearly wanted to drink; he'd take sips of water, ice, apple juice and orange juice, and then hold the liquid in his little mouth. But either his throat still hurts too much or he can't make himself swallow on a psychological level, because invariably, he spat out the liquid and almost immediately requested more. He also watched some TV and asked for my cell so he could play Angry Birds. One of the highlights of my day happened after he'd scored a win playing the game, and a tiny, strained smile cracked his oft-emotionless face. It was fleeting, gone almost as soon as it appeared, but it reminded me how much I miss him and how much I want him to be better.

I still believe that this is a spiritual battle at its core, and that this is a substantial hit from the other side. After all, what a 'coincidence' that Blogger was down for two days when he really needed support. Please pray for him, for health, for recovery, for healing. We want to give a testimony, a story of survival, perseverance, faith.

Thank you.

Addendum: Just to add from Adam's evening update call, his WBC rose from .5 this morning at 6 AM to 1.1 at 6 PM, so he's making good progress there. His platelets also held up better than they had previously, coming in at 52. His hemoglobin held at 9 as well. So those are all good things to praise God for. However, as he recovers and his white blood cells begin their work, he's having increasing troubles with his oxygen saturation levels. He's on 6 litres of high flow oxygen, yet he's apparently fallen into the 70s at points this evening (100% is normal for a healthy person) after satting in the low 90s and high 80s when I was with him this afternoon. The PICU docs are hanging around trying to decide if he'll need additional intervention. So please hold that in prayer; pray that his lungs will continue functioning properly and that whatever is causing his saturation issues will resolve soon.


  1. We are all praying for Logan. Please keep us updated.

  2. Yes, praying in Jesus' name to protect Logan from bleeding and to heal his fragile body. Jesus there is no other name higher, greater, or more powerful than Your name. We come to You tonight and ask for Your will to be done. For healing and for protection from anything that would like to come against Logan. He is Yours and You love him even more than anyone could imagine. Be with him. Comfort him. Give him hope and endurance. He needs You Jesus. In Your powerful, healing name, Jesus, Amen. Love you Sherry.

  3. Still praying, praying, praying, and just repeated Lara's lovely prayer! Will continue to, as always.

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  5. Wendy Campbell shared this prayer request on the Women of Faith community message board. What a beautiful son you have!

    Dear God,
    I just call for your blessing on Logan. Dear Lord, I pray that you will heal his body entirely. Please perform a miraculous work and remove all cancer from his body and heal it of all the collateral damages. Abba Father, we do not know the future, we don't know all the ramifications of what we ask, but in this little boy's life we pray that you will intercede and let him live a full healthy life. Our perspective is not yours, and you know what is to come, and we trust and love you Lord. I know that whatever the outcome, Logan is in your hands and there is no better place to be. I pray the promise of Psalm 37:4--Delight yourself in the Lord and He will give you the desires of your heart. I know that little children are dear to you, and that delighting ourselves with you means alligning ourselves with you and what you value. The desire of our heart is for this little one to be spared and to be given a full blessed life to lead. I ask all these things in Jesus' name, AMEN!

  6. Praying hard, praying constantly.

  7. Lifting your entire family up in prayer.

  8. Sherry,
    Just want to make sure you know we're still out here thinking of Logan and pulling for him, even amidst our own lives. I hope he starts immediate recovery and that all of this is just a setback. I can't imagine how tough it must be for him with such a sore throat, but he is obviously a strong little man and he WILL get through it, even if he shouldn't have to.

  9. Still here and praying for Logan

  10. I DID wonder about that....I tried updating our family blog and it kept saying it was not up and running due to maintenance and I thought about Logan and wondered if you were trying to post or not. Grr.
    Praying now, praying hard, and passing the word along to rally more...
    Love you all.

  11. HI
    My name is Jenna and I came across your site. Logan is an amazing brave, courageous, determined, strong fighter. he is an inspirational hero. I will be praying hard for Logan and your whole family. U will in my thoughts.

  12. So sorry for the technical difficulties and the fact that it kept you from us and us from you. Please know that the prayers have not wavered! Praying for all those things you've mentioned and those deep in your heart!

  13. I've been following along since you posted your site on another board (CC). Just wanted to let you know there is another person out there thinking of Logan. I hope the new drug is doing what it is supposed to do without any nasty side effects. I will keep thinking of all of you.