Still Here

I've not done a great job of keeping you all updated on us; I'm sorry for that. I want you to know what's going on so you'll know how to pray for Logan and for our family, because I absolutely, positively, undoubtedly covet the continuation of those prayers! We need them like we need water, food and shelter. So thank you.

Logan has been home for a week and a day now, and things are moving along nicely. He's had two clinic visits -- he goes on Mondays and Thursdays to be checked out and to see if he needs 'fill-ups', as he and Adam adorably call transfusions. So far, so good. He continues to amaze me with his resilience, and I'm so grateful to God for making my little man so very strong. So much stronger than I wish he had to be, of course, but that doesn't mean I'm not grateful anyway. His siblings have proven effective physical therapists; he's walking better and has much greater endurance than he did just a week ago. Better yet, he's just so happy to be here with us. So it's a joy worth celebrating.

Keeping up with the seemingly endless dosing of his medications is a challenge; he's currently on six different drugs, some once a day, some twice. We have a careful schedule in place so as to avoid missing any doses, but it's still a challenge to keep up and I often find myself falling behind here and there. It's not something I ever thought I'd be doing, so it's taken a lot of adjustment to get into the swing of things.

Anyway, it's after midnight and I need to get to bed so I'll be awake tomorrow. I awoke this morning with my left eyelid swollen and painful, and it's still sore even now, so I know I need rest. Thank you, thank you, thank you for your continued support and for being there for us. I appreciate you all more than you would ever know, for being our visible and invisible support system and for continuing to lift Logan up to God. We pray for sustained healing and minimal future side effects of the treatments he's received. But more than that, we pray to thank God for all He's done so far to make our little sunshine well once again. Good night to you and many blessings as you finish up this week.