The kind of cancer that afflicted our sweet boy, AT/RT, or Atypical Teratoid Rhabdoid Tumor, is incredibly rare. It may be a small exaggeration, but I think you're more likely to be struck by lightning twice than to develop this kind of disease.
Since it's so unusual, it stands to reason that there isn't much funding available for research. This means that kids like Logan suffer through a brutal treatment protocol that only works in roughly 40 percent of cases, and almost always leaves the child with lifelong resulting disabilities, including profound hearing loss, stunted growth, a damaged adrenal system, and so on.
With all of that said, we'd be honored if anyone interested in making a donation in Logan's memory would contribute to the following research fund:
'Cure ATRT Now'
Dana-Farber Cancer Institute
Pediatric Brain Tumor Program
450 Brookline Ave. SW331
Boston, MA 02215
Checks should be made out to 'Cure ATRT Now'.
Thank you for your support and prayers.
Thank you Sherry for sharing this information. Brian and I will definitely make a donation.
ReplyDeleteThank you! Several of my friends have asked as well.
ReplyDeletePraying for a blessed celebration tomorrow and strength for all as we honor your special sunshine.
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