About Us

Our family of 6 (dad Adam, mom Sherry, big sister Abby and little brothers Isaac and Brady -- who was born on December 14, 2010) joined the ranks of pediatric cancer fighters when our 4-year old son Logan was diagnosed with a dangerous and highly malignant form of brain cancer in mid-August 2010. Logan's cancer journey began abruptly on Sunday, August 15, when his right eye suddenly turned inward during dinner. Twenty-four hours later, we were checking into Children's Hospital Oakland and finding out that life sometimes takes you places you'd never, ever imagine yourself going.

Monday, February 6, 2012

Monday

So where are we now....

Yesterday, Logan had an MRI to look at his brain and spine, as well as a CT on his abdomen and stomach. The goal of the CT was to check for any underlying, previously undetected causes of fluid retention; the goal of the MRI was to check for neurological issues that could be contributing or causing his continued out-of-touch state. The CT showed a large amount of fluid around his tummy and lots of excess fat in his liver, neither of which is surprising. (Dr. T explained that the fat in the liver was the result of being on decadron for so long. I'm very pleased to say that he's now weaned from decadron and on hydrocortisone instead.) It also showed fluid around his heart. Dr. T didn't think that it was affecting his heart function, since they'd typically see low blood pressures with that kind of thing and Logan is hypertensive, but he's going to have an EKG to be sure. The MRI showed essentially no change from the previous scan, save larger ventricles. The girls (and yes, I can call them girls because they're probably younger than me) from neuro came by to adjust the setting on his shunt, which should bring the swelling back down again and relieve pressure.

So that's where we are. No one can explain why his vascular system is leaking so much fluid into his tissue. They're trying hard to get to the bottom of it, but it's not something they've seen before so they're not sure how to proceed. Dr. T did find one isolate study that associated edema like Logan has with a pairing of voriconizole (anti-fungal) and the blood pressure medication he was taking, so we've switched the latter in hopes that it will better control his BP AND bring down the edema. But it's really a shot in the dark. He readily admits that he has no idea what's going on.

Thank you for your continued prayers for Logan and for our family. Please pray for wisdom for the medical team, as well as healing and peace for Logan. Healing is there. We just have to BELIEVE.

11 comments:

  1. Doing my healing and believing praying now, and for medical team & your family!

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  2. Still following along and praying, Sherry.

    Kris from LJ

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  3. Praying for you. I've added Logan to the intercessory prayer team of Christian Healing Ministries. Our God is the Divine Physician and Healer. Praying for a miracle.

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  4. We are praying, Logan's full recovery is always on my mind and always being lifted up to God.
    We love you and will not stop fighting alongside you and Logan and Logan's team!

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  5. Amen to what Kari J said! We are praying for Logan's healing many times during each day ~ we know God is at work!

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  6. Amen to Kari's words, again and thank you, Jesus! "Now to Him that can do immeasurably more than we could ask or imagine, according to His power that is at work in us,to Him be glory"! Continuing constant prayer and sending lots of love!

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  7. i'm thinking of you guys today and sending good healing vibes and well wishes. wish there was something i could do - other than pray my brains out! ;-)

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  8. As we continue to pray can someone please give us an update.

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  9. sherry - i have been thinking about you and logan. i hope all is well and you have been busy, which is why we haven't heard from you. i'm worried. and have been praying and lifting all of you up in prayer all week.

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