Monday

So where are we now....

Yesterday, Logan had an MRI to look at his brain and spine, as well as a CT on his abdomen and stomach. The goal of the CT was to check for any underlying, previously undetected causes of fluid retention; the goal of the MRI was to check for neurological issues that could be contributing or causing his continued out-of-touch state. The CT showed a large amount of fluid around his tummy and lots of excess fat in his liver, neither of which is surprising. (Dr. T explained that the fat in the liver was the result of being on decadron for so long. I'm very pleased to say that he's now weaned from decadron and on hydrocortisone instead.) It also showed fluid around his heart. Dr. T didn't think that it was affecting his heart function, since they'd typically see low blood pressures with that kind of thing and Logan is hypertensive, but he's going to have an EKG to be sure. The MRI showed essentially no change from the previous scan, save larger ventricles. The girls (and yes, I can call them girls because they're probably younger than me) from neuro came by to adjust the setting on his shunt, which should bring the swelling back down again and relieve pressure.

So that's where we are. No one can explain why his vascular system is leaking so much fluid into his tissue. They're trying hard to get to the bottom of it, but it's not something they've seen before so they're not sure how to proceed. Dr. T did find one isolate study that associated edema like Logan has with a pairing of voriconizole (anti-fungal) and the blood pressure medication he was taking, so we've switched the latter in hopes that it will better control his BP AND bring down the edema. But it's really a shot in the dark. He readily admits that he has no idea what's going on.

Thank you for your continued prayers for Logan and for our family. Please pray for wisdom for the medical team, as well as healing and peace for Logan. Healing is there. We just have to BELIEVE.